Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation

Search Page

Filters

My NCBI Filters

Text availability

Article attribute

Article type

Publication date

Search Results

11 results

Filters applied: . Clear all
Page 1
Childhood-Onset Lupus Nephritis in the Childhood Arthritis and Rheumatology Research Alliance Registry: Short-Term Kidney Status and Variation in Care.
Smitherman EA, Chahine RA, Beukelman T, Lewandowski LB, Rahman AKMF, Wenderfer SE, Curtis JR, Hersh AO; CARRA Registry Investigators. Smitherman EA, et al. Arthritis Care Res (Hoboken). 2023 Jul;75(7):1553-1562. doi: 10.1002/acr.25002. Epub 2023 Feb 12. Arthritis Care Res (Hoboken). 2023. PMID: 36775844
OBJECTIVE: The goal was to characterize short-term kidney status and describe variation in early care utilization in a multicenter cohort of patients with childhood-onset systemic lupus erythematosus (cSLE) and nephritis. ...Additional studies are needed to better understa …
OBJECTIVE: The goal was to characterize short-term kidney status and describe variation in early care utilization in a multicenter co …
First-line options for systemic juvenile idiopathic arthritis treatment: an observational study of Childhood Arthritis and Rheumatology Research Alliance Consensus Treatment Plans.
Beukelman T, Tomlinson G, Nigrovic PA, Dennos A, Del Gaizo V, Jelinek M, Riordan ME, Schanberg LE, Mohan S, Pfeifer E, Kimura Y; CARRA FROST Investigators. Beukelman T, et al. Pediatr Rheumatol Online J. 2022 Dec 8;20(1):113. doi: 10.1186/s12969-022-00768-6. Pediatr Rheumatol Online J. 2022. PMID: 36482434 Free PMC article.
CONCLUSION: Nearly all patients received treatment with biologics during the study period, and 46% of biologic CTP patients did not receive oral GC within the first month of treatment. The majority of patients had favorable short-term clinical outcomes. Increased use of bi …
CONCLUSION: Nearly all patients received treatment with biologics during the study period, and 46% of biologic CTP patients did not receive …
Patient-Reported Outcomes Among Transition-Age Young Adults With Juvenile Idiopathic Arthritis in the Childhood Arthritis and Rheumatology Research Alliance Registry.
Smitherman EA, Chahine RA, Bitencourt N, Rahman AKMF, Lawson EF, Chang JC; CARRA Registry Investigators and CARRA Transition Workgroup. Smitherman EA, et al. J Rheumatol. 2023 Jan;50(1):98-106. doi: 10.3899/jrheum.220514. Epub 2022 Sep 15. J Rheumatol. 2023. PMID: 36109074
METHODS: We included young adults with JIA enrolled in the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry from 2015 to 2019 with age 18 years at their last clinical site visit. We used data from the CARRA Registry Long-term Follow-up program, which …
METHODS: We included young adults with JIA enrolled in the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry from 2015 …
Discontinuing adalimumab in patients with controlled juvenile idiopathic arthritis-associated uveitis (ADJUST-Adalimumab in Juvenile Idiopathic Arthritis-associated Uveitis Stopping Trial): study protocol for a randomised controlled trial.
Acharya NR, Ebert CD, Kelly NK, Porco TC, Ramanan AV, Arnold BF; ADJUST Research Group. Acharya NR, et al. Trials. 2020 Oct 27;21(1):887. doi: 10.1186/s13063-020-04796-z. Trials. 2020. PMID: 33109240 Free PMC article.
Adalimumab, a tumour necrosis factor (TNF)-alpha inhibitor, effectively controls joint and eye inflammation; however, its long-term use may increase the risk of adverse health outcomes and place an undue financial burden on the patient and healthcare system given its high …
Adalimumab, a tumour necrosis factor (TNF)-alpha inhibitor, effectively controls joint and eye inflammation; however, its long-term u …
Association of Short-Term Ultraviolet Radiation Exposure and Disease Severity in Juvenile Dermatomyositis: Results From the Childhood Arthritis and Rheumatology Research Alliance Legacy Registry.
Neely J, Long CS, Sturrock H, Kim S; Childhood Arthritis and Rheumatology Research Alliance Registry Investigators. Neely J, et al. Arthritis Care Res (Hoboken). 2019 Dec;71(12):1600-1605. doi: 10.1002/acr.23840. Epub 2019 Oct 30. Arthritis Care Res (Hoboken). 2019. PMID: 30714338
Glucocorticoid-associated osteoporosis in chronic inflammatory diseases: epidemiology, mechanisms, diagnosis, and treatment.
von Scheven E, Corbin KJ, Stagi S, Cimaz R. von Scheven E, et al. Curr Osteoporos Rep. 2014 Sep;12(3):289-99. doi: 10.1007/s11914-014-0228-x. Curr Osteoporos Rep. 2014. PMID: 25001898 Review.
Bisphosphonates have been used to treat secondary osteoporosis in children, but limited experience and potential long-term toxicity warrant caution in routine use. This article reviews the factors that influence loss of normal bone strength and evidence for effective treat …
Bisphosphonates have been used to treat secondary osteoporosis in children, but limited experience and potential long-term toxicity w …
Educational and vocational outcomes of adults with childhood- and adult-onset systemic lupus erythematosus: nine years of followup.
Lawson EF, Hersh AO, Trupin L, von Scheven E, Okumura MJ, Yazdany J, Yelin EH. Lawson EF, et al. Among authors: von scheven e. Arthritis Care Res (Hoboken). 2014 May;66(5):717-24. doi: 10.1002/acr.22228. Arthritis Care Res (Hoboken). 2014. PMID: 24877200 Free PMC article.
Exploring reasons for low rates of employment and providing vocational support may be important to maximize long-term functional outcomes in patients with childhood-onset SLE....
Exploring reasons for low rates of employment and providing vocational support may be important to maximize long-term functional outc …
Adult outcomes of childhood-onset rheumatic diseases.
Hersh A, von Scheven E, Yelin E. Hersh A, et al. Among authors: von scheven e. Nat Rev Rheumatol. 2011 May;7(5):290-5. doi: 10.1038/nrrheum.2011.38. Epub 2011 Apr 12. Nat Rev Rheumatol. 2011. PMID: 21487383 Free PMC article. Review.
A number of studies published over the past 10 years have examined the long-term health, functional and quality of life outcomes of adults with childhood-onset rheumatic diseases such as juvenile idiopathic arthritis, systemic lupus erythematosus, juvenile dermatomyositis …
A number of studies published over the past 10 years have examined the long-term health, functional and quality of life outcomes of a …
Differences in long-term disease activity and treatment of adult patients with childhood- and adult-onset systemic lupus erythematosus.
Hersh AO, von Scheven E, Yazdany J, Panopalis P, Trupin L, Julian L, Katz P, Criswell LA, Yelin E. Hersh AO, et al. Among authors: von scheven e. Arthritis Rheum. 2009 Jan 15;61(1):13-20. doi: 10.1002/art.24091. Arthritis Rheum. 2009. PMID: 19116979 Free PMC article.
OBJECTIVE: To compare differences in long-term outcome between adults with childhood-onset (age at diagnosis <18 years) systemic lupus erythematosus (SLE) and with adult-onset SLE. ...CONCLUSION: This study demonstrates important differences in the outcomes of patients …
OBJECTIVE: To compare differences in long-term outcome between adults with childhood-onset (age at diagnosis <18 years) systemic l …
11 results