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ECFS standards of care on CFTR-related disorders: Towards a comprehensive program for affected individuals.
De Wachter E, De Boeck K, Sermet-Gaudelus I, Simmonds NJ, Munck A, Naehrlich L, Barben J, Boyd C, Veen SJ, Carr SB, Fajac I, Farrell PM, Girodon E, Gonska T, Grody WW, Jain M, Jung A, Kerem E, Raraigh KS, van Koningsbruggen-Rietschel S, Waller MD, Southern KW, Castellani C; ECFS Diagnostic Network Working Group. De Wachter E, et al. Among authors: farrell pm. J Cyst Fibros. 2024 Feb 21:S1569-1993(24)00011-0. doi: 10.1016/j.jcf.2024.01.012. Online ahead of print. J Cyst Fibros. 2024. PMID: 38388234
Topics included are: 1) benefits and obstacles to collect data from pwCFTR-RD are discussed, together with the opportunity to integrate them into established CF-registries; 2) the potential of infants designated CRMS/CFSPID to develop a CFTR-RD and how to communicate this informa …
Topics included are: 1) benefits and obstacles to collect data from pwCFTR-RD are discussed, together with the opportunity to integrate them …
Late Diagnosis in the Era of Universal Newborn Screening Negatively Affects Short- and Long-Term Growth and Health Outcomes in Infants with Cystic Fibrosis.
Martiniano SL, Wu R, Farrell PM, Ren CL, Sontag MK, Elbert A, McColley SA. Martiniano SL, et al. Among authors: farrell pm. J Pediatr. 2023 Nov;262:113595. doi: 10.1016/j.jpeds.2023.113595. Epub 2023 Jul 3. J Pediatr. 2023. PMID: 37406853
Through evaluation of national patient registry data, we determined that late initiation of cystic fibrosis care is associated with poorer long-term nutritional outcomes....
Through evaluation of national patient registry data, we determined that late initiation of cystic fibrosis care is associated with poorer l …
Maternal and Newborn Hospital Outcomes of Perinatal SARS-CoV-2 Infection: A National Registry.
Hudak ML, Flannery DD, Barnette K, Getzlaff T, Gautam S, Dhudasia MB, Mukhopadhyay S, Pfeifer MR, Ellington SR, Galang RR, Snead MC, Woodworth KR, Zapata LB, Puopolo KM; AMERICAN ACADEMY OF PEDIATRICS NPC-19 REGISTRY INVESTIGATORS. Hudak ML, et al. Pediatrics. 2023 Feb 1;151(2):e2022059595. doi: 10.1542/peds.2022-059595. Pediatrics. 2023. PMID: 36995183
CONCLUSIONS: Early in the pandemic, SARS-CoV-2 infection was acquired by newborns at variable rates and without apparent short-term effects. During a period that preceded widespread availability of vaccines, we observed higher than expected numbers of preterm births and ma …
CONCLUSIONS: Early in the pandemic, SARS-CoV-2 infection was acquired by newborns at variable rates and without apparent short-term e …
Newborn screening alone insufficient to improve pulmonary outcomes for cystic fibrosis.
Barreda CB, Farrell PM, Laxova A, Eickhoff JC, Braun AT, Coller RJ, Rock MJ. Barreda CB, et al. Among authors: farrell pm. J Cyst Fibros. 2021 May;20(3):492-498. doi: 10.1016/j.jcf.2020.06.002. Epub 2020 Jun 13. J Cyst Fibros. 2021. PMID: 32546430 Free PMC article.
Because the evaluations of these subjects by protocol ended in 2012, our objective was to assess long-term pulmonary and mortality outcomes. METHODS: Retrospective analysis of the RCT cohort utilized longitudinal outcome measures obtained from the Cystic Fibrosis Foundatio …
Because the evaluations of these subjects by protocol ended in 2012, our objective was to assess long-term pulmonary and mortality ou …
Active management is required to turn the tide for depleted Ostrea edulis stocks from the effects of overfishing, disease and invasive species.
Helmer L, Farrell P, Hendy I, Harding S, Robertson M, Preston J. Helmer L, et al. Among authors: farrell p. PeerJ. 2019 Feb 28;7:e6431. doi: 10.7717/peerj.6431. eCollection 2019. PeerJ. 2019. PMID: 30842897 Free PMC article.
Here, we report on the benthic assemblage of O. edulis and the invasive gastropod Crepidula fornicata across three actively managed South coast harbors in one of the few remaining O. edulis fisheries in the UK. Long-term data reveals that numbers of O. edulis sampled withi …
Here, we report on the benthic assemblage of O. edulis and the invasive gastropod Crepidula fornicata across three actively managed South co …
Poor recovery from cystic fibrosis pulmonary exacerbations is associated with poor long-term outcomes.
Sanders DB, Zhao Q, Li Z, Farrell PM. Sanders DB, et al. Among authors: farrell pm. Pediatr Pulmonol. 2017 Oct;52(10):1268-1275. doi: 10.1002/ppul.23765. Epub 2017 Sep 7. Pediatr Pulmonol. 2017. PMID: 28881091 Free PMC article.
RATIONALE: People with CF treated with IV antibiotics for a pulmonary exacerbation (PEx) frequently fail to recover to baseline FEV(1) . The long-term impact of these events has not been studied. OBJECTIVES: To determine if a patient's spirometric recovery after a PEx is a …
RATIONALE: People with CF treated with IV antibiotics for a pulmonary exacerbation (PEx) frequently fail to recover to baseline FEV(1) . The …
Pubertal Height Growth and Adult Height in Cystic Fibrosis After Newborn Screening.
Zhang Z, Lindstrom MJ, Farrell PM, Lai HJ; Wisconsin Cystic Fibrosis Neonatal Screening Group. Zhang Z, et al. Among authors: farrell pm. Pediatrics. 2016 May;137(5):e20152907. doi: 10.1542/peds.2015-2907. Epub 2016 Apr 5. Pediatrics. 2016. PMID: 27244789 Free PMC article. Clinical Trial.
BACKGROUND: To examine long-term growth benefit of newborn screening (NBS), adolescent peak height velocity (PHV), and adult height were compared between the screened (diagnosed early via NBS) and the control (identified generally by symptoms) in the Wisconsin Randomized C …
BACKGROUND: To examine long-term growth benefit of newborn screening (NBS), adolescent peak height velocity (PHV), and adult height w …
Evaluating a prototype device designed to alleviate night vision goggle induced neck strain among military personnel.
Dibblee J, Worthy P, Farrell P, Hetzler M, Reid S, Stevenson J, Fischer S. Dibblee J, et al. Among authors: farrell p. Ergonomics. 2015;58(12):2067-77. doi: 10.1080/00140139.2015.1046500. Epub 2015 Jun 3. Ergonomics. 2015. PMID: 25932658 Clinical Trial.
The results of this design verification study indicate that the HSSD may be a realistic, feasible near-term solution to intervene on the high prevalence of neck trouble among rotary-wing aircrew. ...
The results of this design verification study indicate that the HSSD may be a realistic, feasible near-term solution to intervene on …
Solving the Bloch equation with periodic excitation using harmonic balancing: application to Rabi modulated excitation.
Tahayori B, Johnston LA, Layton KJ, Farrell PM, Mareels IM. Tahayori B, et al. Among authors: farrell pm. IEEE Trans Med Imaging. 2015 Oct;34(10):2118-30. doi: 10.1109/TMI.2015.2423313. Epub 2015 Apr 15. IEEE Trans Med Imaging. 2015. PMID: 25879910
The accuracy of the proposed analytic approximate series solution is verified using both a simulation study as well as experimental data derived from a spherical phantom with doped water under continuous-wave excitation. Typically a five term series suffices to achieve a r …
The accuracy of the proposed analytic approximate series solution is verified using both a simulation study as well as experimental data der …
Long-term follow-up of cystic fibrosis newborn screening: psychosocial functioning of adolescents and young adults.
Tluczek A, Laxova A, Grieve A, Heun A, Brown RL, Rock MJ, Gershan WM, Farrell PM. Tluczek A, et al. Among authors: farrell pm. J Cyst Fibros. 2014 Mar;13(2):227-34. doi: 10.1016/j.jcf.2013.10.001. Epub 2013 Oct 21. J Cyst Fibros. 2014. PMID: 24157354 Free PMC article.
BACKGROUND: Long-term psychosocial outcomes of cystic fibrosis (CF) patients diagnosed through newborn screening remain unknown. ...
BACKGROUND: Long-term psychosocial outcomes of cystic fibrosis (CF) patients diagnosed through newborn screening remain unknown. ...
50 results